These meetings provide our directors with the opportunity to:
- Oversee and make decisions about the running of the organisation
- Hear reports from staff about the organisations services and programs
- Examine financial reports
- Learn about renal disease and what can be done to reduce its impact in their communities
Patients and their families are also welcome at directors’ meetings so that they can share the issues that are affecting them.
Western Desert Dialysis is governed by an all Indigenous board of directors elected by the members of our corporation. They are Pintupi Luritja people from the communities of the Western Desert, and include dialysis patients and their family members. Our directors meet four times a year with an Annual General Meeting (AGM) held in November each year. In addition to the AGM, patients and members are also able to attend directors meetings to listen and contribute.
Irene has had a long involvement with Purple House and is the current Chairperson. She is a senior community leader and long-term community advocate. She has had extensive involvement in Education, been an ATSIC Regional Councillor, Central Land Council delegate, the Chairperson of Kintore Community Council and of Waltja Tjutangku Palyapayi. She started dialysis treatment in 2013 and spends her time in Kintore and Alice Springs. She is the Central Australian representative on Kidney Health Australia’s national consumer group.
Linda was a teacher in Papunya for over 20 years and has also held the position of vice-president of the Papunya community council. Linda currently sits on the Papunya Community’s Local Board and is a member of their Elders Group. Her father was senior Pintupi elder and leader Nosepeg Tjupurrula Tjungkata.
Marlene has been a Director of WDNWPT for over 10 years. Until she retired she was an Aboriginal Health Worker at the Pintupi Homelands Health Service. She has served on a number of community boards and committees over the years as well as caring for her children and grandchildren. Marlene lives in Kintore, NT.
Palita has been involved with Purple House for many years. She lives in Kintore where she cares for a young family. Palita has a long history of advocacy in community service delivery and a strong personal interest in advocating for remote dialysis services.
Bobby West Tjupurrula
Bobby is a senior Pintupi man and community leader from Kiwirrkurra community. Bobby is a Papunya Tula artist and shareholder and was involved in the original collaborative Kiwirrkurra Men’s painting which was auctioned for $340,000 for the Western Desert Dialysis Appeal. In 2011 Bobby won the General Painting Prize in the Telstra National Aboriginal and Torres Strait Islander Art Award. Bobby commenced dialysis treatment in 2014.
Pamela’s father, prominent Papunya Tula artist Turkey Tolson, was involved with the Kintore Men’s Painting for the Western Desert Dialysis Art Appeal. Pamela has a background as a health worker for the Pintupi Homelands Health Service (PHHS) and wants to continue her father’s work advocating for dialysis out bush.
Audrey lives in Mt Liebig, NT, where she has traditional ties. Audrey has been a past Community Councillor and Chairperson. Currently she sits on the Local Board and works in the community office. She has been a director of Purple House for many years and is a strong advocate for remote dialysis.
Rita currently works in the Watiyawanu School at Mt Liebig. She is a former chair of Animparrinpi Yututju Women’s Aboriginal Corporation. Rita is passionate about growing remote dialysis services so that more people can return home. She has one daughter, loves sitting by the fire and eating healthy food.
Ivy Smith is from Wanarn. She lives in Alice Springs for dialysis treatment and gets home on dialysis to Wanarn and Warburton a couple of times a year. Ivy became a Purple House director to speak up for dialysis out bush so people can get home to country.
Kaylene is from Mt Liebig community. She currently lives in Alice Springs for dialysis, spending time in Mt Liebig when she can. She is a long-term Purple House director.
Douglas is a traditional owner and community leader from Haasts Bluff community. He has been a representative for his community with the Central Land Council and a local authority member for the MacDonnell Regional Council. He is the current chairperson for Ngurratjuta/Pmara Ntjarra Aboriginal Corporation. He lives on his country in Haasts Bluff and attends dialysis in Papunya.
Central Australian Renal Voice
CARV provides a structured linkage between patients and service providers, facilitating meaningful discussions for the provision of advice, direction, and advocacy for planning, delivery, design, measurement and evaluation of renal health care in Central Australia.
The purpose of CARV is to empower renal patients to advocate for change so that their concerns and objectives are valued and to work with health, accommodation and social support providers to improve service and health outcomes for dialysis patients.
CARV will help improve health outcomes for patients and their families through:
- Working together to address cultural safety issues to ensure that the provision of services is respectful, appropriate and free of discrimination,
- Patients voicing their concerns about dialysis treatment and living in Alice Springs, and
- Service providers understanding the problems these patients face while receiving dialysis treatment and living in Alice Springs.
Purple House currently support CARV by assisting with coordination and secretariat for meetings. CARV representatives meet on a quarterly basis.